We got Audrey home in the early afternoon on Friday and all has been great. We are still working on how to best schedule the many medication intervals and feedings and I imagine that will get much easier with time but its been a little overwhelming initially. It all started with the pharmacy that delivered the beta-blockers medication to us mislabeling the bottle with instructions to give her a dose many many times greater than what she should be getting. We were able to get it cleared up before giving her the first dose on Friday but not until after calls back to hospital, the pharmacy, and calculations done between the discharge papers, actual prescrip, and bottle label. That was stressful and a quick lesson for us right off the bat to double check everything.

She has done great with everything. She has been eating very well although its a struggle to get her to wake up to eat sometimes. We're not sure how long she would go between feedings on her own but we are trying to feed her every few hours right now.

Avery and Ryan have definitely loved having both Audrey and Mommy back home. They are constantly wanting to check on her, help feed her, and give her kisses on her head. It's a little surreal to actually have the five of us now at home and not have to pack up any bags to head back out to the hospital immediately. We can sit on the couch and catch our breath and relax, somewhat. I was telling Amanda that it almost scares me how normal everything feels with Audrey and that I almost forget about her condition sometimes.

- Mark