The blog posts have tailed off quite a bit now that we are home and we have been swamped adjusting to the crazy routine. Audrey has been doing great and it hasn't felt like there was much in the way of new updates to write about. She is eating great from the bottle and sleeping very well.
Ryan and Avery continue to be completely in love with her and want to constantly check on her. Ryan will walk up and rub her head and say "little baby Audrey is so cute". Avery is always the helper and wants to hold her or help feed her constantly.
We go back to Egleston on Wednesday for our post-op meeting with the surgeon and also our first followup meeting with the electrophysiologists. We will be meeting with the EP's weekly or biweekly for a while until everyone is comfortable and we see that we can reduce the frequency. It's been really odd to not be able to lookup at a monitor and see her heart rhythm at any second of the day since she got home. Our only view into how her heart is doing right now is through observing her signs such as breathing or coloring or using a stethoscope to listen for ourselves. We haven't seen anything abnormal but it will be good to have her get an ekg again tomorrow. We are supposed to be getting a tool that looks like a little computer mouse that we hold up to her skin where the pacemaker is and it reports all of her heart rhythm data up to a central server that any of the doctors can take a look at. We'll be doing this on regular intervals so they have the data at all times.
I always think back to the discussion I had with the EP on the day we were being discharged and I was trying to ask him about anything and everything I could before we were to have her home without all of the monitoring she had been on for the first couple weeks. I half-jokingly asked him "so what do we need to do?" and his response was "just take her home and love her". There was quite a bit more discussed as well but that basic instruction sticks with us more than many of the others that got lost in the overabundance of information.
- Mark
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