6/14 Birthday

BGK is doing well, is stable and currently being transported over to Egleston. As I mentioned in the previous post, we were relieved and pleasantly surprised that she came out crying. The Pediatric Cardiologist was there for the birth along with the OB, Neonatal Doctor, and many others. Everything was surprisingly calm in the operating room. We were able to get a few pictures and Amanda got to give her a kiss before they wheeled her up to the NICU to take all the measurements, insert the IV, and get her stabilized.

Amanda is now out of the operating recovery room and returned to the room that she has been in for 36 days now. Rather than the post-partum ward she returned to the High Risk pregnancy ward same room that she has been in and knows all the nurses and has all of her stuff moved into. She is very tired now but doing great.

The transport crew just brought BGK by the room so that Amanda could see her and touch her before heading over to the Egleston Childrens healthcare Cardiac Intensive Care Unit. The pediatric cardiologist came along with BGK to the room to talk to us about what he saw while in NICU with her. Said she was doing extremely well initially but then saw some runs of tachycardia and some short runs of 2:1 heart block, the same things that we saw while in Amanda. They went ahead and administered an antiarrhythmic Lidocaine through the IV. Lidocaine is the IV form of one of the medications that Amanda has been taking orally the past month. This seemed to help and over the last hour he only saw a couple blips of tachycardia for a few seconds. He indicated that this first 72 hours will be very telling as the heart rhythm changes quite a bit during this time and then settles in to what it will be longterm. Overall he said she is doing great and is very feisty and active and all signs are great.

I am heading over to Egleston now. Will post more later.

Attaching a picture of Amanda giving her a kiss as they were taking BGK out of the C-section operating room.

- Mark