In yesterday's post I was saying that things seem to move along really slowly and we have to remain patient. When Amanda got here this morning we were shocked how much had changed, for the better for certain. She had the belly button IV and all of the others, except one in her arm, completely removed. They had completely weened her off of the Lidocaine allowing the belly button IV removal, that was the big one. The Lidocaine will be replaced by the Mexiletine starting tomorrow. This was a HUGE step allowing us to sit and hold her in her arms and even feed her some. It was amazing what a big step it felt like to be able to hold her without so many wired intrusions. She still isnt eating much from a bottle so they are still doing that through the tube but she did show signs of improvement on that today also by taking some.
As you can see in the picture below, Audrey got herself a nice new crib also. She is no longer in the heatlamp bed and is keeping her temperature stable on her own pretty well. This is the bed that she will be transitioned over to the stepdown ward in.
Tomorrow!! So she'll be moved over to a room that one of us will stay in with her. It's very similar to a post-partum room with a small couch-bed, tv, and bathroom. They'll use a telemetry device to be able to constantly monitor her heart rhythm but its a small mobile device so we'll be able to hold her, carry her around, and she'll be somewhat mobile. Its a small box with a few wires going to stickers that will be placed on her chest, just like an ekg attaches, that transmits to the monitors. Few steps closer to taking Audrey home.
Progress feels great.
- Mark
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