Tuesday, November 30, 2010
Monday, November 22, 2010
Great Great News
It was a HUGE day today for us at Audrey's EP appointment! It had been 3 months since our last appointment and I have been practically counting the days until today's appointment because the doctor mentioned last time that we would look at transitioning from medicines every 6 hours to every 8 hours. Upon walking in, the doctor asked us "whats new and exciting?" to which I replied that "this appointment is exciting!" because of the possibility of the change. The midnight and 6am daily medicine intervals along with the two older siblings that seem to also come in our room for some reason nightly is exhausting. He confirmed that we can make that change starting today so I am extremely relieved that we can try to start sleeping once again. Rather than 12-6-12-6 medicine intervals we'll now switch over to three times a day, most likely around the 7-3-11 times.
Along with the great medicine news, they downloaded all of the data from her pacemaker from the past few months of history. Everything looked really good and there was no sign of any tachycardia rhythms. The pacer had kicked in about 5% of the time and they were very very pleased with how she was doing. The medicine and pacemaker combo is really working well for Audrey. They did not change any of the pacemaker settings and we will be going back in 3 months for our next checkup.
The documentary crew came in with the cameras and got some video of Audrey's appointment to go with the video that we took a few weeks ago. Audrey put on a good show and smiled and laughed most of the time. We're not yet sure when that video and documentation will all be compiled and available but we'll make sure to post it when it is.
While there, one of our favorite cardiologists from this whole journey poked his head in to see Audrey. He was the first one we were lucky to see on the day when we were at the perinatologist and were sent immediately over to the cardiologists office. He was the one that discussed with us the initial possibilities and then was the Cardiologist that was there in the room when Audrey was born. We were always very impressed by not only his knowledge and demeanor but the way that he reached out to some doctors well beyond the practice for additional opinions and input on our case. He made a point of going out of his way to come in for some of the weekend ultrasounds while Amanda was stuck in the hospital and seemed to truly take a personal interest in helping us. Seeing him again today made Amanda tear up to think back through it all.
We are grateful that Audrey is doing as well as she is at this point. She is now around 14-15 lbs and seems huge compared to the 5lb she was when we brought her home back in June. She is smiling quite a bit and her big sister and brother love trying to entertain her and make her laugh.
Thank you again to all of friends and family that have helped us throughout.
- Mark
Along with the great medicine news, they downloaded all of the data from her pacemaker from the past few months of history. Everything looked really good and there was no sign of any tachycardia rhythms. The pacer had kicked in about 5% of the time and they were very very pleased with how she was doing. The medicine and pacemaker combo is really working well for Audrey. They did not change any of the pacemaker settings and we will be going back in 3 months for our next checkup.
The documentary crew came in with the cameras and got some video of Audrey's appointment to go with the video that we took a few weeks ago. Audrey put on a good show and smiled and laughed most of the time. We're not yet sure when that video and documentation will all be compiled and available but we'll make sure to post it when it is.
While there, one of our favorite cardiologists from this whole journey poked his head in to see Audrey. He was the first one we were lucky to see on the day when we were at the perinatologist and were sent immediately over to the cardiologists office. He was the one that discussed with us the initial possibilities and then was the Cardiologist that was there in the room when Audrey was born. We were always very impressed by not only his knowledge and demeanor but the way that he reached out to some doctors well beyond the practice for additional opinions and input on our case. He made a point of going out of his way to come in for some of the weekend ultrasounds while Amanda was stuck in the hospital and seemed to truly take a personal interest in helping us. Seeing him again today made Amanda tear up to think back through it all.
We are grateful that Audrey is doing as well as she is at this point. She is now around 14-15 lbs and seems huge compared to the 5lb she was when we brought her home back in June. She is smiling quite a bit and her big sister and brother love trying to entertain her and make her laugh.
Thank you again to all of friends and family that have helped us throughout.
- Mark
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