Audrey is now roughly 4 and a half months old and is growing and progressing great. We are always a little confused on whether to consider her 18 weeks old or 13 weeks old due to being 5 weeks early when we gauge where she stands on her development. She has really gotten so much more stable physically, is interacting much more, and is smiling a lot. She is still on the same two medications every 6 hours so sleep is still somewhat dictated by that pattern. She doesn't have the opportunity to truly attempt to sleep through the night because I have to wake her at midnight for meds. Last night we had a malfunction in the routine and I didn't wake up at midnight and Audrey slept right through until her 6am medication time so we know she could do it if able. I'm hoping more than anything that we'll get to transition to 8 hour medication intervals at next months Cardiology appointment.
Amanda took Audrey to the Pediatrician for her 4 month appointment yesterday and it was nothing but good news. She is up to 12 lb and 14 oz and roughly 30 percentile for weight and 35th percentile for height. They were shocked at the jump, especially in height, from her last visit. Her pediatrician commented that her gross motor skills were excellent and she is exactly where a normal 4 month old should be on all fronts. The Pediatrician commented that "we just don't realize what an amazing job the doctors did" to get Audrey to where she is today and how absolutely amazing it is. Despite the shots Audrey had to get and was cranky about all day, it was awesome to get the news that we generally would take for granted.
In past posts I have mentioned the write-up on our crazy story that Children's Healthcare of Atlanta did to use for some advertising/fundraising efforts. They said that the story went over really well and was inspiring when presented in one of their events. A few weeks ago they asked if we would be willing to do some video interviews about the journey also and we definitely said yes we'd love to help however possible. Amanda, Audrey and myself went down to Egleston last week and recorded some video discussions. They also recorded some video with the doctors and nurses we worked with most closely. Not sure how exactly they'll use it all but she mentioned that they are redesigning their website and it is going to be featured on there once that it is complete.
Overall, Audrey is doing excellent. With two older siblings she definitely gets to attend quite a few different events and always goes along for the ride without fussing at all. We feel very fortunate.
- Mark
I know, not the best pic but the only recent one I have on my phone, and kind of funny. I think the flash surprised her.
