Another day in the books at Egleston, but not without some excitement of course. At night when Audrey is sleeping her heart rate naturally slows down. The past couple of nights Amanda and I had noticed it slipping below the 80 mark which struck us both as odd considering her pacer is set so that it will ensure that is the low point and will kick in to ensure that. This is concerning because Audrey's type 3 of Long QT is known to be triggered during low heart rates and sleeping. We have come to ignore a lot of the readings on the monitors because many are false readings so we didn't read too much into it. Today when Amanda brought it up to the doctors during rounds they interrogated the pacer and found that both the leads running from the pacer to her heart are fractured and not operating correctly. This occurred in the past few days here at the hospital somehow so they went ahead and turned off the pacing and we are relying on medicine alone until surgery on Thursday when they will replace those leads along with the ICD. This definitely led to our anxiety levels ratcheting up slightly further today. We should find out tomorrow what time on Thursday Audrey is scheduled for.
Yesterday Avery and Ryan came down to visit with the intentions of going up to the 6th floor and watching the July 4th fireworks together from the window but with the heavy rain delaying things we decided to bag that idea and head home instead after hanging out for a little while.
- Mark
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