We were looking forward to taking Audrey to her Electro-physiologist appointment down at Egleston today. It's been a full month since we got a true look at how her heart is truly doing. They first weighed her and she was up to 7 lb 7 oz, which was up 12 ounces from last Tuesday's pediatric appointment, just a week ago. That was great news. As I have mentioned in the past, the pacemaker not only paces the heart but it also collects all of the data. Her data looked great! She did not have a single instance of tachycardic heart rate, above the 180 bpm range. The pacemaker was pacing the upper chambers 56% of the time and the other time the heart was recharging and sending the signal on its own all the way through the lower chambers. The doctor was really pleased with the results. Due to her growth and development they have upped her medication dosages to keep up with her size gain and also reduced the lower limit of the pacer to 100 bpm rather than 120. We go back in another month for our next follow-up. It was definitely very positive results and a great feeling.
Childrens Healthcare also asked us if we would be willing to meet with their media department to document our entire story of Audrey. They would like to use it in some variety of fundraising efforts, since they are a non-profit hospital. They said it could entail them coming to our house to take some photos of the whole family. They were not sure what format exactly it would be documented but could be some glossy brochure, website, or something like that. We told them that we absolutely would do anything of that sort as we are extremely appreciative of the care we have been provided throughout.
I know these posts are few and far between these days but that is really because thing are somewhat calm and stable and we love it.
- Mark
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